22q Family

Kid holding a dog

Mission Statement

Dedicated to raising awareness for 22q differences while connecting, supporting and offering accurate information to families affected by the disorder. We are your one-stop-shop foundation supporting you from diagnosis thru adulthood.

“In every conceivable manner, the family is a link to our past, bridge to our future.” -Alex Haley

The above quote perfectly encapsulates where we come from and what we hope to be for the 22q community. Our link to the past is our connection to The Dempster Family Foundation. Prior to the creation of our organization, we, like many of you, received support, guidance and a sense of togetherness from DFF. Their ideals of creating a community of those with shared experiences and raising awareness to better the lives of everyone affected by the disorder are something that we intend to continue as we grow. We are going to maintain and build upon many of the programs that many of us within the 22q community have come to rely on such as the 22q Education Station, access to the latest research, and opportunities to connect.  Our bridge to the future is that we intend to create new ways to connect members of our community, as well as work to make sure 22q becomes a household name. It was important to us to keep the word "Family" in the name of the organization because we hope to become a part of yours'. This is your organization. Therefore, we welcome feedback, input and ideas so that we can be the most effective for the 22q Family. We appreciate the opportunity to serve you all and to help take the mystery out of 22q!

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