Celebrating 22q Awareness Month

Join us this month to spread awareness and make an impact!

Celebrating 22q Awareness Month
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November 1st Kicks off 22q Awareness Month

22q11.2 affects an estimated 1 in 2,000 to 4,000 births, presenting a complex array of medical, developmental, and educational challenges—and yet it remains one of the most underdiagnosed and misunderstood genetic conditions in the world.

Our mission is to ensure no family navigates this journey alone, connecting our global network through vital support programs, practical resources, and community advocacy. November marks our most critical fundraising initiative of the year, and this milestone is extra special: we are celebrating our 10th anniversary!

Under this year’s theme, Stronger Together, we are setting our sights on an ambitious $100,000 goal to expand the life-changing services our community relies on every day. True global awareness begins with individual action; every conversation started, story shared, and dollar contributed helps shine a light on 22q worldwide. Explore below to see how you can join the cause and help us reach the finish line!

Ways to Give

SUPPORT OUR PROGRAMS

Ask Your Employer

Ask your employer if they have an employee matching program like Benevity or Yourcause.

 

We are a 501c(3) and are eligible to receive donations and our EIN#47-5675819.

 

 

 

Join Our Fundraising Challenge

Rally your friends and compete for a cause! Setting up a Facebook fundraiser takes less than two minutes, and every dollar raised directly funds vital support for the 22q community.

 

Whoever raises the most money by the end of the month will receive special 22q Family merch! 

 

 

 

CREATE POST: RAISE MONEY
Learn more about Join Our Fundraising Challenge

Become a Recurring Donor

Your gift helps families access programs, resources, and support when they need it most.  Choose the frequency of your donation (monthly, quarterly, annually, etc). 

 

Each new recurring donor will receive a special message from our mascot, QT!

 

 

 

START GIVING
Learn more about Become a Recurring Donor

Shop Our 22q Store

Show your 22q pride! Choose from our selection of 22q-themed tees, stickers, hoodies, blankets, and more. 70% of all profits go back to support the 22q Familly Foundation.

 

 

 

SHOP NOW
Learn more about Shop Our 22q Store

Highlight Your Loved One

Sponsor a day on our calendar for us to highlight your loved one’s journey on social media! It’s the perfect way to spread awareness, inspire others in this journey, and support our programs.

 

 

 

SECURE YOUR DAY
Learn more about Highlight Your Loved One

Ways to Get Involved

BECOME A 22Q ADVOCATE
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We’ll be posting facts about 22q every day throughout November that you can reshare with your community! 

Join in on our daily photo challenge to connect with others and spread the word! More information coming soon. 

Post about your 22q journey, and tag us so we can reshare on social media!

Change your profile picture and header for the month! Our premade templates to post about 22q awareness are coming soon.

Download our free educational pamphlets to share with your community! 

We Are Stronger Together

What makes the 22q community extraordinary is the sheer depth of who we are. Within our community are writers putting words to invisible battles, caregivers fighting for their child’s potential, clinicians bridging critical care gaps, and creators transforming empathy into action.

On our own, the journey can feel heavy; but together, we are an unbreakable network of hope and real progress. Your perspective is a missing piece of the puzzle, and your voice can be the very lifeline another family is searching for right now.

So, don’t wait on the sidelines! Bring what you love to do, plug into our mission, and help us turn our 10th anniversary into the most impactful chapter our community has ever written.

See how our community is raising awareness!

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