The Prevett Family
Lexi was immediately admitted to the NICU at Memorial Health in Savannah, GA after she was born due to her weight. It wa…
Karly Peterson: ILLINOIS
We are always looking to share the unique journey our community is on and what not better way to do so then to get an insider’s look!
Lexi was immediately admitted to the NICU at Memorial Health in Savannah, GA after she was born due to her weight. It wa…
Hello my name is Dayna and this is my story. I am 26, almost 27 years old. I was diagnosed with 22q at a very young age.…
Hi all, Our son Viraaj has 22 Q deletion.He was born in India and at 40 days of birth suffered seizures due to low calc…
Meet Ellie Mae Williams. This year has had tremendous ups and downs for her. We live in Miami-Dade, FL and Covid has tak…
I am a Nurse in the frontlines working to fight against COVID19 and I have 22q11.2 DS. I’ve been a nurse for 11 y…
My name is Paige Crooks-my husband and I have 6 year old boy/girl twins and a 3 year old son, Cohen, who has 22q. At 28…
My name is Alyah and this is my 22qt Jonah! Our 22q journey began at my 26 week ultrasound when we learned the heart bre…
Hi! My name is Joellen and this is my daughter, Maryn. Our journey with 22q began before Maryn was born. At my regular a…